Rare Disease Day 2024
We supported the Rare Diseases campaign that launched on Rare Disease Day (February 29th) in the Irish Independent and online at HealthNews.ie
Rare Diseases looked at all things going on in the Rare Disease community from exciting treatment developments to advocating for change and recognition to shortening the diagnostic odyssey and featured insightful content from Rare Disease Ireland, EURORDIS, Rare Disease International, Science Foundation Ireland, Alexion, Alnylam Pharmaceuticals and more
The full supplement is available to read here:
https://www.healthnews.ie/rare-diseases/
The TSC Ireland article is available here: http://www.tinyurl.com/4erux44f
Read the inspiring story of our wonderful Mary Vasseghi and the superb research she is conducting on TSC in Ireland with Future Neuro. Mary is a key figure in our TSC Ireland committee and is doing exceptional work to improve the lives of everyone in Ireland living with TSC.
Rare Disease Day 2024 – FutureNeuro (futureneurocentre.ie)
Watch this video for more about Mary’s journey in the world of TSC research;