Who Are We?
TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here. The organisation has built up steadily over the years.
We hold an annual conference in Dublin aimed at families, carers and individuals with TSC. We have been fortunate to welcome expert national and international speakers who shared their knowledge on a variety of relevant topics such as neurology and epilepsy, psychology, dermatology, kidney disease and autism amongst others. This has provided an excellent opportunity for people to meet the experts, ask questions, to voice their concerns and meet others living with TSC.
We host a regular Family Fun Day which is a fun, relaxed occasion allowing families to mingle, share experiences and simply get to know each other. Our most recent Family Day was held in Kilkenny at the Jurrasic Newpark in June of 2025 and it was a great success!
TSC Ireland have hosted several educational webinars on a variety of topics and have more coming up soon.
What is TSC?
Tuberous sclerosis complex (TSC), is a rare genetic disease that causes non-cancerous (benign) tumours to grow in different areas of the body, most commonly the brain, kidneys, skin, heart, and lungs. The name tuberous sclerosis comes from the characteristic tuber or potato-like nodules in the brain, which are affected by calcium with age and become hard or sclerotic.