Irish Rare Kidney Disease Research Project

‘Stepping into the shoes of young people & families with rare renal disorders moving between child and adult services.’

This research project is being undertaken Melissa Kinch based in CHI Crumlin and UCD as part of her PhD project. “We are looking for volunteers living with a rare kidney disease (including TSC) to share their experiences of moving between child and adult health services who are:

• Young people aged between 18-24 years old Parents/caregivers of young people who
  have moved from child to adult services”

• We also wish to recruit young people age 12-17 and parents/caregivers to look at their experiences of living with a rare renal disease or condition”

For more information or to take part please contact : melissa.kinch@ucdconnect.ie